Welcome to my blog!

Thank you for taking the time to stop by and visit! We hope to share with you our journey of raising a child with Achondroplasia, the most common type of dwarfism. If this is your first time here, please start by reading Caitlyn's Story. It will share the beginning of her life with you. Enjoy!

Monday, October 1, 2012

Dwarfism Awareness Month Kick Off!!

For most of you, you’re already aware that October has been declared National Dwarfism Month but LPA but some of you might be learning this for the first time.  It’s hard to believe that Caitlyn is now 7 and a half years old!  During those years, we have become friends with so many wonderful and loving people.  I feel so incredibly fortunate to call all of you POLP (Parents of Little People) and others involved in LPA my friends.  I’d be missing out on some pretty amazing people had Caitlyn not been born as she was.  Instead of me typing out a long story about how this all started, please check my post titled “CAITLYN’S STORY.”

October has been declared National Dwarfism Awareness Month by Little People of America. Little People of America (LPA) is a national support organization for people with dwarfism and their families. LPA provides peer, parent and medical support for the dwarfism community.  And I'm so very excited to say that California has OFFICIALLY declared October Dwarfism Awareness Month.  We will be meeting at the State Capital in Sacramento on October 24th to be there for the presentation of ACR-152.

LPA began in 1957 with actor Billy Barty and 20 short-statured friends. The first LPA meeting was monumental for a group of people who were severely mislabeled and misunderstood by society. Today, Little People of America is a thriving international organization providing much needed support, education, educational scholarships, and community outreach.

In declaring Dwarfism Awareness Month, LPA hopes to raise positive awareness around dwarfism, address common misconceptions, and increase opportunities for people with dwarfism around the country.
“People with dwarfism are no different than any other person. We may just need a well-placed stool. Our members are children, college students, business professionals, doctors, engineers, mechanics, artists and teachers. We can do anything an average-height person can do,” says Lois Lamb, LPA President and a person with dwarfism.
“Raising a child with dwarfism is new for most parents. Being part of LPA has made a tremendous difference. My daughter and I both have great friends and role models. High school is not an easy time for most teens, but neither of us feels alone in dealing with any extra challenges,” says Joanna Campbell, average-height mother of a teen with dwarfism.

More about LPA and dwarfism:
* There are over 200 distinct forms of dwarfism and skeletal dysplasias.
* People with dwarfism are generally not taller than 4′ 10″ at adult height. The typical height range is 2′8″ to 4′5″.
* Eighty percent of people with dwarfism have average-height parents and siblings.
* There are an estimated 30,000 people in the United States and 651,000 internationally with a type of dwarfism.
* In July 2009 the word “midget” was declared inappropriate and offensive. Preferable terms are: having dwarfism, short stature, little person, lp, and the medical terminology use of dwarf. A person’s name is always the most preferred.
* LPA has registered a complaint with the FCC over the use of the “m” word. Our goal is to raise awareness around the offensive impact of the word in order to eliminate use of it in media, popular culture and in everyday language.
* LPA has 6500 members across the United States and includes 70 chapters active in all 50 states.
* Skeletal Dysplasias affect bone growth, but generally do not affect cognitive abilities.
* LPA hosts an annual national conference each July which draws 2500 attendees for a week of activities, including educational and medical workshops, sports, and social networking and events.
For more information about National Dwarfism Awareness Month, please visit www.lpaonline.org or call 1-888-LPA-2001. Events supporting National Dwarfism Awareness Month will be occurring throughout the United States all during the month. Contact the chapter in your area, or the Regional Coordinator for Dwarfism Awareness Month listed on the website.

The National Dwarfism Awareness Month program is dedicated to increasing public knowledge about people with dwarfism.

Mission of LPA “LPA is dedicated to improving the quality of life for people with dwarfism throughout their lives while celebrating with great pride Little People’s contribution to social diversity. LPA strives to bring solutions and global awareness to the prominent issues affecting individuals of short stature and their families.”

We are amazed everyday about how Caitlyn has grown into a smart, beautiful, strong-willed, funny, (the list goes on and on) girl.  


Post a Comment