Welcome to my blog!

Thank you for taking the time to stop by and visit! We hope to share with you our journey of raising a child with Achondroplasia, the most common type of dwarfism. If this is your first time here, please start by reading Caitlyn's Story. It will share the beginning of her life with you. Enjoy!

Thursday, February 24, 2011

Announcing my LPA Fundraiser

So if you’ve followed my blog or are friends with me in any way, you know how much I enjoy the music of these guys…

The Chris Gardner Band
L-R: Joey Gonzales, Nikko Vargas, Chris Gardner, Dwight Hogan and Aaron Shively

I can’t count the number of times that I have seen them since first being introduced to them back in June, but it’s been at least once a month.  With each show and talking to them, I befriended all of them on Facebook.  One night while out with my friend Cheryl, we were talking with them and said that they probably thought of us as groupies and Aaron said, “no way, we consider you our friends.” 
Maybe you’ll remember one of my previous posts about one of their shows, out at Swabbies on the Sacramento River and the girls (as in Caty and Hanna) came with me.  And who could forget this picture…
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Each time I head out to hear the guys play, Chris always asks how the girls are doing. 
As time went on, the wheels in my head started spinning…. and my fundraiser idea started coming to life….  Any idea where I’m going with this? :-)

I approached Chris back in December at a show and he gave me his number and said to call him.  So a few days later I made that phone call.  Chris knew about Caty being a little person but said that he honestly didn’t know anything about LPA.  After a briefly explanation about the organization, I asked the big question… what did he think about the band helping us out and putting on a concert for a fundraiser?  His answer… We would absolutely love to!  And even better, they are volunteering their time for the night. 

And my idea came to life!! 

Then came the task of finding a location… Many of the times that I have seen the guys play has been at a place called Stoney Inn.  I sent Kevin, the owner, a message via facebook asking if he would like to help out and he said ABSOLUTELY!!  After this I’m thinking, MAN, everything is just falling into place. 

I set up a meeting with Kevin and had a few chapter members join me, including Melisa Chase.  Yes, she’s been in on it from the beginning, but I swore her to secrecy.  Kevin is very laid back and said all the details are up to me and that they will be more than happy to host the event.  Stoney’s is going to provide a Spaghetti Dinner for those attending and will take $2 off of the cover charge for  those attending. I still have to figure out the price but it’s going to be something like $15 for adults and $10 for kids.  Where else can you beat that price for dinner and a concert..nowhere!!  There will also be a few line-dance lessons, possibly taught by myself, as I know a few, or by the employees of Stoney’s – as they are all FABULOUS dancers!

So I’ve got the place, the band, the date, the time, now I need friends and family to attend!!

This is by no means my official invitation just my way of getting the word out there. 

We hope that you’ll join us on Sunday July 31st from 5:00-9:00 when Stoney Inn and the Chris Gardner Band come together to help out the San Joaquin Valley Chapter of LPA!!

Now do you know why I said on a few blog posts and on FB that I was so excited that I could hardly contain myself?!!

Because of these guys and their generosity!


Wednesday, February 23, 2011


Hanna just loves hiding under her blanket!  Sometimes she’ll sit there for minutes at a time before she pops out.

Here was our game of Peek-A-Boo one morning

Where’s Hanna?


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My Little Valentine’s

Hope that everyone had a wonderful Valentine’s Day!  With these little Valentine’s of mine, my day was filled with plenty of love!

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Wordless Wednesday – February 23rd 2011


Saturday, February 19, 2011

Snuggle up with a Good Book

Caty has been reading up a storm lately!  She’s unbelievable!  And we’ve never sat down and helped her, at least not much.  She sees a word once and memorizes it. 

She has also improved so much with her speech – just recently she finally discovered how to correctly make the hard K sound.  So “tootnie” is now cookie – this was one of our favorites that she said incorrectly – “"tuptake” is now cupcake and so on. 


Scooby Bakes a Cake

Thursday, February 17, 2011

He Has WHAT??

Here is a post from my friend Tonya, who’s son Knoah has Achondroplasia, the same diagnosis as Caitlyn.


Origin: Greek

Meaning: A- in the beginning, Chondro- Bone, Plasia- Without.

Literal translation: In the beginning without bone= Achondroplasia...NOT TRUE.

See, people with Achondroplasia obviously have bones...they have a skeleton, like everyone else, however, their body mechanics work differently than an Average height person. Without a long drawn out explanation, which I could easily give with fore thought, a person with Achondroplasia creates Cartilage which SLOWLY converts to bone. By SLOW, I mean, VERY SLOW. This is the reason for the short stature. Their "bone switch" is turn on continuously, which overloads the system and bone grows slower. Doesn't make sense...I know.

See, I have learned a bit about dwarfism over the 4 and a half years I have had Knoah. I have learned to see things differently. It has opened my eyes to a world I never really paid attention too.

When I had Jacob and Hannah, both who are average height, they looked "normal"...little did I know there is no such this as normal. Enter Knoah. A human child, who by all standards has the cards stacked against him from the beginning...if you look at it that way.

Knoah is shaped differently than and average height child. 99% of days, I don't even notice it. Confined in the walls of our home, he is Knoah. Mouthy, determined, creating mischief and gladly follows along with his older brother and sisters commands...ugh...

I once wrote a post about the "Imperfect" child. Which he is...wait for it. He is not your average 4 year old who jumps, climbs, runs and plays. He does not simply get dressed and throw his socks on. Basic needs he should have are a challenge to him, so we get creative.

Lets look at him. It's okay to look and study him, I give you permission. What do you notice about him?

He has a large head...massive actually. Shirt head holes are simply not big enough...STRETCH them out...

His arms hit belly button level, which means he cannot touch the top of his head.

His torso is long, his belly protrudes and his backside perks out.

His legs are short...at 4 years old he is wearing 12 months pants. His legs remind me of a chicken drumstick. Meaty on top and thins out as you head toward his feet.

His fingers remind me of a starfish. Banana shaped and pointy fingers with fat pads at the base of his hand. Trident Configuration.

He finds his male parts hysterically funny, as all boys do and finds a way to make sure to do the triple daily check to make sure it's still there because god forbid something happen to his wanky.

He can fold himself in directions impossible for an average height person, unless your double jointed.

He walks with a swag(ger)...he is pimpified and runs with a waddle. Throwing each leg out to the side.

He knows he's a Little Person and is okay with it. We run into the daily "MOM! Help! I can't reach it, my arms are too little". :-) Yes, son they are.

When I found out I was pregnant I begged God (knowing he was probably my last) please, PLEASE make him stay little forever...WISH GRANTED. Oh! Not exactly what I had in mind but better than I expected. At 4 years old, he stands at 32 inches and weighs 31 pounds, the size of your average 14 month old...BUT I DON'T CARE.

He is Knoah. Spunky. Loud. Sweet. Loveable. Likes Hugs and Kisses....and donuts.

Remember what I said about the "Imperfect" child. He is "Imperfect by many standards, but by my mine, words have a way of having a new meaning depending on how you break it down. IMPERFECT...I'M PERFECT...Yes. He's Perfect the way he is.

He will have struggles, we all do. His will happen to be physical. He will, as we do, get creative with certain thing...toileting, dressing, etc, but overall. I make him fend  for himself. I cannot and do not want to do everything for him. When he's running and falls, I turn and look and say "Get up" to which he gets on all fours and "Pops" up. He wants something on the second shelf. He grabs his step stool, or chair...or anything with extra heigh actually to get it.

I lightly make light of the fact that a mothers back was built to carry and infant to what 19 months old...old enough they can walk alone with being carried...a POLP will carry their child several times a day due to exhaustion. Little legs take extra steps. My back has learned to cope :-)

I made the comment a while ago about seeing an average height child next to Knoah...Knoah is more visually appealing to me. Why? Probably because I love the way he is shaped, built. I admire the little things about his body and realize that yes, he is your average 4 year old, he is also "different". Being different is not bad. I am bi-racial and that is the first thing people see about me. They don't see my personality, my knowledge, they see my skin color. It's the same with Knoah. Only until you get past the initial shock of what your seeing can you look past it and see a person for who they are, how they contribute to your life and the life of others.
Knoah is no different. His body is, but he's not. Would I change him if I had the chance? No. He would not be who he is had he not of been short statured. He would not be as creative with his environment. I would not see things in his perspective.

I had a child who is I'M PERFECT and that is just fine by me. Please don't think he is a science project because he's not, he is however a work of art. A lone piece of perfection. Beautifully crafted and engineered to fit his specs.

I tell him almost everyday "Knoah, I love that your little" to which he replies "Yes but I'm not a baby. I'm a toddler" :-) No, no one will mistake you for a baby when you open your mouth to scream "it's your fault" when something doesn't go your way. At that point, I'm like dwarfism? SO WHAT...your not going to talk to me that way. I don't care how cute the world thinks you are...yet, he still manages to use his charm on unsuspecting strangers to give him candy, money and whatever else they pull out of their pockets to give him because "he's cute"...double edged sword.

Yes, Knoah has Achondroplasia. Yes, it has been a long, hard road since his birth, but you know what, he has taught me more in his 4 years than I could have learned in a lifetime without him. He has enriched Jacob and Hannah's lives, he has shown them a different view point. Something I could have never taught them unless they were forced to see it.

I love Jacob and Hannah more today than I did when I had them, I took their health, their "perfect bodies" and relished in the fact they would have no issues...little did I know it took a child with a disability to open our eyes to a world we would have never encounter. Feelings we never thought we would feel. A stronger family bond because Jacob and Hanna realize that Knoah is different and they are happily helping him achieve his goals and become your average short child.

He is who he is. My son...Knoah.


TO READ MORE ABOUT KNOAH'S LIFE VISIT OUR BLOG AT HTTP://knoahsarc.org/. It is now in it's 4th year...not to bad!

Thanks to Tonya for allowing me to share this.  She has such a wonderful way with words and couldn't have said it any better.

And to share with you my I'M PERFECT Catybug

Wednesday, February 16, 2011

Wordless Wednesday

February 16th 2010

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Caught in the act!!

Tuesday, February 15, 2011

LPA Valentine’s Party

We had our chapter Valentine’s Party this past Saturday and the weather was PERFECT!!! 

Some Bay Area friends, Shawna and her girls Joscalynne and Airah made the drive to spend the afternoon with us.  Caty had so much fun playing with them. 

Caty and Airah


Caty and Jos


My dear friend Cheryl and her two kids, Jordan and Alannah joined us for the day.  They were helpers at the craft tables as well as outside while the kids were playing and us parents were having a Regional Planning meeting.  Thanks to Cheryl who offered to take pictures during the day. 


Caty and Alanna


Working on their pillowcases…I’ll have to get a picture of the finished product and post it. 


Jordan, Caty and Alannah


Outside for some fun!


Jordan being goofy

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Getting some help from Jordan

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Making bookmarks

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Jordan and one of his many silly faces


Caty and her heart that Jordan made her


The girls being silly


Here comes Aidan

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And Caty


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High 5’s for Jordan

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Nana and Hanna hanging out – because Caty was so busy with her friends, my mom got some uninterrupted Hanna time, which never happens!


Such a fun day we had!  We loved sharing our LPA family with Cheryl and the kids. 

Looking forward to the next event, which will be in April and hosted by the Chase family.