Welcome to my blog!

Thank you for taking the time to stop by and visit! We hope to share with you our journey of raising a child with Achondroplasia, the most common type of dwarfism. If this is your first time here, please start by reading Caitlyn's Story. It will share the beginning of her life with you. Enjoy!

Thursday, October 8, 2009

National Dwarfism Awareness Month

 

Dwarfism Awareness

LITTLE PEOPLE OF AMERICA RECOGNIZES OCTOBER AS

NATIONAL DWARFISM AWARENESS MONTH

For most of you, you’re already aware that October is now National Dwarfism Month but some of you might be learning this for the first time.  It’s hard to believe that Caitlyn is now 4 and a half years old!  During those years, we have become friends with so many wonderful and loving people.  I feels so incredibly fortunate to call all of you POLP (Parents of Little People) and others involved in LPA my friends.  I’d be missing out on some pretty amazing people had Caitlyn not been born as she was.  Instead of me typing out a long story about our situation, please check my post titled “CAITLYN’S STORY.”

 

October has been declared National Dwarfism Awareness Month by Little People of America. Little People of America (LPA) is a national support organization for people with dwarfism and their families. LPA provides peer, parent and medical support for the dwarfism community.

LPA began in 1957 with actor Billy Barty and 20 short-statured friends. The first LPA meeting was monumental for a group of people who were severely mislabeled and misunderstood by society. Today, Little People of America is a thriving international organization providing much needed support, education, educational scholarships, and community outreach.

In declaring Dwarfism Awareness Month, LPA hopes to raise positive awareness around dwarfism, address common misconceptions, and increase opportunities for people with dwarfism around the country.

“People with dwarfism are no different than any other person. We may just need a well-placed stool. Our members are children, college students, business professionals, doctors, engineers, mechanics, artists and teachers. We can do anything an average-height person can do,” says Lois Lamb, LPA President and a person with dwarfism.

“Raising a child with dwarfism is new for most parents. Being part of LPA has made a tremendous difference. My daughter and I both have great friends and role models. High school is not an easy time for most teens, but neither of us feels alone in dealing with any extra challenges,” says Joanna Campbell, average-height mother of a teen with dwarfism.

More about LPA and dwarfism:

* There are over 200 distinct forms of dwarfism and skeletal dysplasias.
* People with dwarfism are generally not taller than 4′ 10″ at adult height. The typical height range is 2′8″ to 4′5″.
* Eighty percent of people with dwarfism have average-height parents and siblings.
* There are an estimated 30,000 people in the United States and 651,000 internationally with a type of dwarfism.
* In July 2009 the word “midget” was declared inappropriate and offensive. Preferable terms are: having dwarfism, short stature, little person, lp, and the medical terminology use of dwarf. A person’s name is always the most preferred.
* LPA has registered a complaint with the FCC over the use of the “m” word. Our goal is to raise awareness around the offensive impact of the word in order to eliminate use of it in media, popular culture and in everyday language.
* LPA has 6500 members across the United States and includes 70 chapters active in all 50 states.
* Skeletal Dysplasias affect bone growth, but generally do not affect cognitive abilities.
* LPA hosts an annual national conference each July which draws 2500 attendees for a week of activities, including educational and medical workshops, sports, and social networking and events.

For more information about National Dwarfism Awareness Month, please visit www.lpaonline.org or call 1-888-LPA-2001. Events supporting National Dwarfism Awareness Month will be occurring throughout the United States all during the month. Contact the chapter in your area, or the Regional Coordinator for Dwarfism Awareness Month listed on the website.

The National Dwarfism Awareness Month program is dedicated to increasing public knowledge about people with dwarfism.

Mission of LPA “LPA is dedicated to improving the quality of life for people with dwarfism throughout their lives while celebrating with great pride Little People’s contribution to social diversity. LPA strives to bring solutions and global awareness to the prominent issues affecting individuals of short stature and their families.”

The LPA National Office is located in Southern California. You may also contact Joanna Campbell, Executive Director at info@lpaonline.org or (714)368-3689.

Saturday, September 26, 2009

Hanna vs Caty

Hanna is growing like a weed right before our eyes.  It’s amazing!  It’s  hard not comparing Caty and Hanna as they each grow, or not grow in Caty’s case.  Hanna is outgrowing clothes right and left – Caty can wear the same outfit for a year or more sometime.  I’m curious as to when Hanna will pass Caty up – maybe a year from now or a little longer. 
Today I was changing Hanna’s diaper and her hand almost ended up in something that would not have been good!  I never had to worry about that with Caty because her arms wouldn’t reach that far. 
As for milestones, Hanna is right now track.  There is a separate milestone chart for Achondroplasia kids – and Caty always seemed to reach those on the early end. 
Hanna holding her head up - trying to at 9 weeks
010
006
Doing a great job at 15 weeks
014
   018
Caty trying at about 11 weeks
208
210 
Doing a great job at about 15 weeks
DSC01583
Hanna sitting well in her Bumbo seat – 4 months033
036
Caty sitting in her Bumbo seat – about 9 months
DSC02333
Hanna smiling at about 6 weeks
100_7155
Caty smiling at about 8 weeks
185 - smiling at you

And just some other pictures while I’m actually posting a blog because who knows when I’ll get the chance again!
Hanna and Nana
029
Caty and Daddy taking their naps
003
Smiling in her sleep
 004
My girls!
019
A few more from our Labor Day weekend at the cabin
Smore face!
DSC_2743
With my brother and our girls
DSC_2645
Auntie Erin and Hanna
DSC_2648
Caty and Riley
DSC_2651
Uncle Todd and Hanna
DSC_2655
Me and my Hanna
DSC_2676
Riley crying
 DSC_2691
Hanna crying
DSC_2692
Finally two happy girls!
DSC_2686
Down at the lake
DSC_2735

Caty having a BLAST at the lake!

DSC_2731

So the POST A COMMENT failed to show up AGAIN so try clicking on the link that shows the number of comments. Hopefully that will work!

Saturday, September 12, 2009

Labor Day Weekend

First things first, sorry about the picture overload but I have a ton to share…
Over Labor Day weekend we headed to my family’s cabin, in Pinecrest, CA040  
The weekend included all kinds of special moments.  We finally got to meet our niece Riley after 4 months.  Riley is just 3 weeks older than Hanna so a trip to meet her was obviously put off for the summer, mainly due to the fact that my brother and his family live in San Diego – a good 8 hour drive. 

Scott took a half day at school on Friday, picked Caty up from preschool, then we had a quick lunch and were on our way.  Pinecrest is a 3 hour drive from our house and we made it our goal to not stop unless Hanna needed to.  She fell asleep within the first few minutes and slept THE WHOLE WAY!!  We even had to make a stop about 2 hours into the drive for Caty to go potty; she and I hopped out of the car and Scott just kept driving around the parking lot – gotta keep Hanna moving or else.  We got to the cabin and as we got out of the car, Hanna woke up – no complaints at all!  Caty went immediately to Riley as she’s been waiting the 4 months to see her.  It was so fun having the girls all together; there will be so many fun times through the years; I can’t wait! 

We made one trip down to the beach; between all three girls and their naps, we finally made it down around 3:30 and only stayed about an hour. 
128

Just enough time for Caty to get her beach fix in and take some family pictures.  Almost every year since Caty was born, minus last summer, we’ve gotten together and spent a long weekend at the cabin.  It’s fun to see the pictures from our different trips.

2005 – the whole family – aunts, uncles, cousins – everyone minus just one, my cousin JeffFamily Picture 5 

2006

DSC03306

2007


2009
 

 
We mostly spent time playing around the cabin.  My dad brought out Caty’s fishing pole and taught her how to cast – by the end of the weekend, she could cast it out about 20+ feet.  Everyone got into trying out Caty’s Dora pole.
053
119 121 024 059 072

Caty went exploring and found woodsy things to make a collage for her preschool share day.   Scott, Caty, my dad and myself took a boat ride and did a little fishing.  My dad was the only one to get a bit and Caty was so excited about watching the fish being reeled in.  She got to help Uncle Todd drive the boat and LOVED IT!!  FASTER, UNCLE TODD, FASTER!!

065 037 038 039 041 043 045
On Saturday we helped my mom celebrate her 60th birthday.

030
032 
And finally what you’ve all been waiting for (unless you’re on Facebook and have already seen them) – pictures of the cousins together!

 012 013 016 019 081 085 100 109 110

111

And since I haven’t added enough pictures yet, why not some more!

My brother and his beautiful family
025
131132

Nana, Papa and the girls

028
133
078135
141139
062
 020
070 076  089 092 096     138